I might die in 7 hours, and I'm not afraid.

March 07, 2026

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AITA for facing high-risk surgery for my painful bone disease and feeling indifferent about the outcome?

At 14, I live with Multiple Hereditary Exostoses (MHE), a rare bone disease causing painful tumors everywhere, and now face risky surgery that might change my life or end it—and honestly, I don't mind either way.

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Living with MHE means constant pain, limited mobility, and daily struggles that shape how I see the risks ahead—I’m ready for surgery that might help or harm, but I accept whatever outcome comes.

Multiple Hereditary Exostoses (MHE) causes benign bone tumors on my knees, fingers, ribs, and more. These tumors don’t mean cancer, but they cause sharp nerve pain, making walking and writing nearly impossible and leaving me in chronic level-5 pain on a 1-10 scale. My mobility is limited to roughly two minutes of walking at a time.

"I am constantly at level 5 pain (on a scale of 1-10)."

My doctors arranged surgery to remove the most painful tumors from my knee and to replace two cracked ribs with metal. These procedures carry a heavy risk—a 20% chance of death—as well as possible failure to improve or even worsen my condition.

"There is a 20% chance of death with all these very complicated procedures."

Honestly, I’m indifferent about the outcome. If the surgery works, I’ll regain my ability to walk. If not, I’ve adapted enough to handle my reality. And if it ends my life, at least the pain will end too.

🏠 The Aftermath

The surgery is planned soon, but the emotional toll is already part of daily life. I’m living with the aches and frustration caused by MHE while waiting to find out if this risky intervention will bring relief or not.

My family and I are preparing for all possibilities, knowing the uncertainties and dangers involved. Meanwhile, I continue to cope with pain and limit my activities as best I can.

This looming procedure has also made me reflect on my relationship with pain, my own resilience, and what it means to be prepared for life’s hardest outcomes.